Why this priority?
Feedback from young people and parents through our engagement raised concerns about the diagnosis process and support available for children with Autism Spectrum Conditions. We also received feedback from individuals and members of our Reference and Engagement Group about the long waiting times for adult diagnosis and lack of awareness of Autism Spectrum Conditions amongst services.
Carrying out work around Autism Spectrum Conditions was voted as highest priority by patients, service users, carers and the public at our Annual Conference in June 2016.
What are we doing?
We have been talking to people with Autism Spectrum Conditions and their carers about – going to the Doctors, going to the Hospital, information, support and getting a diagnosis. We carried out surveys and visited groups across Worcestershire to speak to people about their experiences.
Along side this we asked GP Practices, the Acute Hospitals and the Worcestershire Health and Care Trust about awareness and adjustments made by their services for people with Autism Spectrum Conditions.
We have also been working with parents to enable them to give feedback to Commissioners about the Umbrella (Neurodevelopmental) Pathway.
We have used the feedback we have gathered to write a report and recommendations in relation to the priorities set out within the Worcestershire All Age Autism Strategy. We received responses from Worcestershire County Council and local NHS Trusts about how they plan to implement the recommendations in our report.
We are working with the Autism Strategic Partnership Board to ensure that the feedback and recommendations from our report are incorporated into the refreshed All Age Autism Strategy for Worcestershire.
Autism Spectrum Conditions Report – March 2018
Umbrella (Neurodevelopmental) Pathway – Parent Feedback – October 2016
Parent Feedback Session: You Said We Did – Response to feedback and proposed actions – Worcestershire County Council – November 2016.
Parent Feedback – Draft Umbrella Pathway leaflets – April 2017
Healthwatch England Autism Report 2017
For further information contact Morag Edmondson
01386 565 952